Clinical Trial: Characteristics and Outcomes of Childhood Moyamoya in the UK
Study Status: Recruiting
Recruit Status: Unknown status
Study Type: Observational
Official Title: Characteristics and Outcomes of Childhood Moyamoya in the UK
Brief Summary: This is a study to ascertain the number of children with moyamoya in the UK, their presenting features, clinical course and outcomes.
Detailed Summary:
The study ahs 3 components:
- Patient identification via the British Paediatric Surveillance Unit, and the 21 collaborating centres
- Record review/patient interview to determine clinical features & outcomes
- Centralised review of imaging data to ascertain radiological phenotypes
Sponsor: Great Ormond Street Hospital for Children NHS Foundation Trust
Current Primary Outcome: Number of children with moyamoya in UK [ Time Frame: 2 years ]
Original Primary Outcome: Same as current
Current Secondary Outcome:
- clinical features & outcomes of childhood moyamoya [ Time Frame: 2 years ]
- radioplogical features of childhood Moyamoya [ Time Frame: 2 years ]
Original Secondary Outcome: Same as current
Information By: Great Ormond Street Hospital for Children NHS Foundation Trust
Dates:
Date Received: April 30, 2015
Date Started: August 2014
Date Completion: August 2016
Last Updated: May 4, 2015
Last Verified: April 2015