Clinical Trial: Alpers Huttenlocher Natural History Study
Study Status: Recruiting
Recruit Status: Recruiting
Study Type: Observational
Official Title: Natural History Study of Alpers Huttenlocher Syndrome
Brief Summary: This is a natural history study of Alpers Huttenlocher Syndrome. Patients will be followed over time to assess clinical symptoms for the purpose of expanding knowledge of this disorder in the medical community.
Detailed Summary: The study team will conduct outpatient visits to the medical center on a 6 month basis, or as patients are able. The patients or their caregivers will complete medical and symptom questionnaires.
Sponsor: Columbia University
Current Primary Outcome: onset age [ Time Frame: 2 years ]
Original Primary Outcome: Same as current
Current Secondary Outcome:
Original Secondary Outcome:
Information By: Columbia University
Dates:
Date Received: January 25, 2017
Date Started: January 2014
Date Completion: December 2020
Last Updated: January 25, 2017
Last Verified: January 2017